MY CHILD HAS EPILEPSY || You are not alone



I just wanted to bring to light this condition and share my story. I want you to know you are alone and that we all are in this together. Here is the continuation of …

39 Comments

  1. Iโ€™m so sorry that your going through this Elle as it must be very scary but I hope I can give you even a little encouragement. I was diagnosed with epilepsy at age 9 after having 2 grand mal seizures (thankfully both at night and in my bed). I continued to have petite mal seizures for a few years and finally medication was able to control them. By the time I turned 16, it had been at least 4 or 5 years since my last seizure and I was able to get my drivers license and at age 22, off all medication, was told by my neurologist that I had officially outgrown my epilepsy. So yes, some children can and do outgrow epilepsy. I am now 55 years old and am close to retiring from a very successful career as a registered nurse and never had another seizure! So do not lose hope. ๐Ÿ’•
    For those who donโ€™t outgrow their epilepsy or medication doesnโ€™t control their seizures and for who surgery is an option, I can tell you that the surgery can be life changing. I have a very good friend who had epilepsy and her seizures were never fully controlled by medication. She was never able to get her drives license because she had numerous seizures a week. Despite that, she had a full and independent life and had a career as a child and youth worker. It wasnโ€™t until she was well into her 30s that she finally found a new neurologist who sent her for testing to see if surgery was an option. Testing showed that she was a good candidate and with faith in both God and her doctors, she had the surgery. It was a complete success. She is now seizure free, medication free and has her drivers license that she NEVER dreamed she would ever have!
    I know every situation is different and unique but never lose faith or hope! Whether you outgrow it, have surgery or just learn to live with it, a full, successful and most importantly happy life is still possible…and likely! Sending hugs and prayers to you and your family as you navigate through this journey. ๐Ÿ™๐Ÿ’ž

  2. Praying your family will be blessed with the best possible outcome. Take care of yourself, too. As Mothers we are so hard on ourselves when our children are suffering, particularly when they are so little. Hugs, love and courage to you!

  3. Oh, Elle, of course this is hard for you! You donโ€™t need to minimize your pain on the basis of what other people are going through. Our babies are our life! Keep giving it to God everyday. There will be times you take it back, but, give it to Him again! You will find something that works for your baby girl.
    Praying for you! ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

  4. Hi Elle, I just found your YouTube channel and have really been enjoying your videos. You have so much to offer us. Your professionalism shines through as compared to so many other youtubers doing makeup/skincare tutorials. I am really impressed! I also found this video regarding your daughter having been diagnosed with epilepsy and wanted to offer my sincere wishes for her health and well-being. I had a former boss who's daughter had epilepsy. She is now a grown woman with several children of her own and doing well with her condition. It sounds like you have already learned alot about epilepsy and knowledge is power. I can see that you have a strong support system among those that follow you on YouTube and that is amazing. I hope you continue to feel that support and that it helps you grow in strength and in faith. Sending prayers and fond wishes your way, Elle!

  5. This too shall pass!!! My cousin had this condition until age 10, ( vaccines caused this) now she is 15 and has grew out of this…5 years now!! There is hope, NEVER give up or stop thinking that!

  6. Prayers and Hugs for you and you daughter and family… I just subscribed to you 2 days ago… My son had Encephalitis when he was 4 yrs. old, not left with epilepsy, but with lifelong learning, social, and emotional disabilities… Love to you โค๐Ÿ™

  7. Awww. My heart goes out to you. As a mom with undiagnosed conditions, I canโ€™t even imagine how frightening it must be. You are an amazingly strong mom & person. Iโ€™m actually going to send you light.

  8. Lord let her be the 10%, healing and hope can and will happen Elle. My two year old had a brain tumor and he is turning 21 next month. He didn't have epilepsy but it was a ordeal and scary. But God will keep you and your family, keep talking to him. He still makes dreams come true.

  9. Elle, my heart is broken for you, your daughter and family. I just learned of your daughters illness and will be praying very very hard for her. When things get real bad and scary, for some reason, I always go to The Blessed Mother and implore Her intervention. She has never let me down once, and I am 60 years old. When my son was born back in 1991, he had a breathing problem with his lungs and they told me he had less than a 10% chance of survival. Brian, my son, had been full term and there were no problems with the pregnancy so this was totally unexpected. A newborn takes between 40 and 50 breaths a minute, Brian was taking 150. His nostrils were flared as if he were running a marathon. I cried, prayed, begged for his life, anything at all I was willing to do. I know you are feeling this way too. As moms, we never want to see our child hurting. Brian was in NeoNatal ICU for 18 days. I was terrified, angry, confused, and trying hard to be a mom to my 4 year old daughter at that time. One day, I just spoke to The Blessed Mother, and asked for Her to intervene. I promised that in return, I would say a decade of the Rosary in her honor every day for the rest of my life. The next day, as usual, I was at the Hospital to meet with my son's team of doctors. Before, each meeting I used to go and look at his latest Xrays (they would take the xrays four times a day). It was on this day, that I saw a small white circle in the middle of his left lung!!! This meant the infection was starting to clear up. I thank Mother Mary, and Jesus every day, as well as saying my decade of the Rosary. This was 28 years ago! Elle, I know your anxiety level is thru the roof because the unexpected is so frightening. Please try to close your eyes and breathe slowly a few times a day. This will help you. How I wish there were some magic words to type to ease your fear and your baby's condition. I can only promise you that I will pray every single day for your little girl until she is better, and then will continue to thank Our Lord for his Healing Hands. I am sorry this post is so long. I just want you to know that the 10% chance is huge! Brian was given the same odds. May God protect and heal your little baby girl as only He can. God Bless my friend.

  10. My son, at 6 years old had several episodes of nausea (never threw up) and deja vu, he wasnโ€™t unconscious at any time nor did he lose control of his body but what was going on in his brain was scary for him. He knows when the episodes are about to happen. Heโ€™s now 35 and it happened again this week, for several hours on and off. The previous time was 8 years ago throughout one day. The neurologist did tests and said seizures at 6 years old. I believe now he was having episodes of Temporal Lobe Epilepsy. Itโ€™s good to know about the PET scan for diagnosis.

  11. Elle try cbd for your daughter it works naturally with the body to help the body heal itself over time, id go with a water soluble over an oil because she'll absorb more of the water soluble. If u have any questions feel free to ask, my thoughts and prayers are with you

  12. Elle, so sorry to respond to this video this late. I have epilepsy that started as a child but no one realized it. It didn't create the typical seizures people are familiar with seeing. It wasn't until I was 20 that the traditional seizures began. I knew for years there was something wrong but the description I could give didn't make sense to doctors for 15 years. Finally when the diagnosis was made it took quite a while to become adjusted to medications and lifestyle. The test your daughter will have in October will be very helpful and there's no physical pain involved. The game skills used will help the doctor to know what parts of her brain are being effected, how she has developed coping skills, and where it will cause strengths or weaknesses in daily life. Things like if she takes in information better my reading or hearing or if she excels with tasks done with the right or left side of the brain. It's all good information so that you can guide her in ways she will be most successful. She may not grow out of it, I didn't, but information you will learn will help her cope, that decrease stress, and decrease symptoms. It is a scary thing to go through for all involved but a life of normalcy can develop so hang in there. If she is limiting herself let her because she likely senses a problem not visible. Let her feel safe during the discovery period. Life with epilepsy can be wonderful. Prayers for your family. ๐Ÿ™ ๐Ÿ’

  13. Dear Elle !!!! You are a wonderful person inside out my heart goes out for you and the little princess will always always keep u in my prayers ๐Ÿ™all the prayers will get answered from all the people who love you and although we have not met in person but there is a bond between us ….have faith in what you believe as thatโ€™s ur biggest strength โค๏ธ

  14. From One Momma to Another Momma. Sweet Elle, I will be praying for your Daughter and family. I know this effects all. My own personal story is I have lost a son who would of been 37 now and I have a 33 year old daughter who has severe chronic RA. She has lost all here lining around her joints and has been through so many meds and nothing has helped except " CBD OIL" ( medical grade) She has to go along way to get it, so I am not sure what state you live in but if it is available to her, I would hope you would give it a try. I know of two other parents who have went thought this journey as well and it worked just like a miracle. I know your heart is breaking, and I understand to see your child hurting . Give it to God, All of it ! Huge Hugs , lots of Love and Prayers <3 I hope you will also find a support group with " like circumstances" <3 <3 <3 XO

  15. Sorry, Elle, without saying too much more. My son is 35. So when I see a Mom out there, it is human nature to let you know we are for you. Whatever it takes to help your daughter. Same time, she is a gift as you know. Chin up. You look great just as you are. My eyes are so sensitive , I always want to flinch when I see you ladies put makeup on the white of the eye, looks great. Sorry mixed up message along with my heart goes out to you, all parents that struggle with conditions. You are not alone. Good Lord is with you. I saw the suggestions about the Me to diet. Think if it was that simple , you would be singing too us ..Many well wishers. 100 percent give it to God, and do the best you can. May you be blessed with Peace and grace through your daughters life. God Bless,
    Debra N ๐Ÿ’“๐Ÿ™๐ŸŒบ

  16. Elle,
    First you do honest great reviews. We all have things we like and don't. As far as your little girl I wish you the very best. I had a friend I grew up with that frequently I did not regular play on the playground so she would have a friend. Yet there were times I spaced and went to play marbles. And a close friend that is an adult who has grand mall seizures. It took a long time to find the right medicine. I commend you for the Grace and love to show the real part of your true concern of life. Yes, many diseases, conditions. I will keep you in prayers. ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ’œ๐ŸŒผ๐Ÿ˜˜๐Ÿ’“๐Ÿ’›.

  17. Hi Elle. I wish I could give you a big hug. My daughter had her first grand mal seizure at 17, in high school. She too failed a
    number of medications. It took a while to get her seizures under control. She is aware that she is 'going there', but once the
    seizure starts, she is not conscious. I have sat on the floor with her many ( too many!) times, waiting for the seizure to end.
    As you know, it is extremely difficult. However, she eventually got her meds customized to work for her. She is now 28. She
    was hoping that perhaps she was growing out of it, and wanted to be able to cut back on the amounts of meds she takes. She
    recently had another EEG and there is far too many signs of epilepsy still showing, so no cutbacks for her. That set her back
    emotionally. But I just spent some time with her tonight, and she is working through it and thinking positive.
    So, you are not alone. We live in Vancouver, BC. I'll send a prayer your way tonight. big hugs

  18. My heart goes out to you, I get it I had a sick child and it was the worst thing ever. I am praying for her and you God will answer your prayers. Much love and Thankyou for sharing, you are awesome ๐Ÿ˜˜๐Ÿ˜˜

  19. My heart breaks for you and your family. But you are doing everything right. Seeking the answers and following doctors recommendations and never ignoring your instincts when it comes to whatโ€™s best for your child and family. Please do not think you are alone. You have many people that are praying for you and your family right now. Just because other people โ€œhave it worseโ€ does not minimize what you are going through. You are not alone. God bless and keep fighting. Love and prayers.

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